Jan 30, 2021- Feb 3, 2021
Red, painful eyes start with painful vision and
light sensitivity (UVEITIS).
Feb 3, 2020-Feb 8, 2020
Tiny dots of a rash begin on my neck- they don't itch, burn, or hurt at this point.
I call my dermatologist to schedule a biopsy,
assuming this must be related to my sarcoidosis.
Feb 3-March 8, 2021
Rash kept getting bigger and more painful.
Not responding to topical Rx creams.
Went for 2nd biopsy on March 8th, the day I started
my 30-day medical leave.
Focused on walking, sleeping, hydrating, and
eating clean. Also journaling and resting.
March 8-April 8, 2021
Off work. Tried the AIP Diet. No gluten, no dairy, no sugar.
Derm and Rheum also put heads together to double my Methotrexate dose.
The diet was difficult but my joints and skin "felt" better even though
my skin still needed lots of help!
April 8- August 8, 2021
Back at work. Still working covid. Boys off for the summer during some of that time.
Started Humira in May 2021 and stopped Methotrexate.
Skin would wax and wane, but I would say it eventually cleared by early to mid-August.
Joints feel much better on Humira. Energy level too.
Had my 2nd episode of uveitis. That responded quickly to Prednisone eye drops.
Skin pretty clear, but under more stress with some work and family stuff.
Delta variant of covid is ravaging my patient population and friends.
Evidence of proteinuria again so will follow-up with my nephrologist (that's more sarc-related, less psoriasis-related).
Still on Humira. Echo and PFT's slightly worse than last year, but lung & spleen CT's show that the Humira is controlling my sarcoidosis.
I have had at least 2 more episodes of uveitis since the last update.
Skin stays mostly clear with the occasional flare in the anterior portion (front) of my neck.
I wrote this piece for all of my fellow Psoriasis Warriors who are
walking this painful, lonely road. It is SO HARD.
One can think they are not a vain person, but when your LARGEST ORGAN (your skin)
is literally on fire with inflammation, it's hard to "hide" from
vanity, comparison, self-loathing, and frustration.
If you love someone with psoriasis, please share this with them and with
others who love them. I hope it brings someone comfort to know
they are not alone and that there are those people who will love us
no matter what.